The Cerebral Family Network’s Survival Guides (there’s a separate guide with resources for each of the 50 states plus Washington, D.C.) and the Care Guide (for recording your child’s medical and care needs) are available to you free. Simply send fill out the form below and we will email you the link to download your copy.
Or you can send us an email survival@cpfamilynetwork.org. Be sure to include your state you want the Survival Guide from.
The CP Family Network families were brought together by our children’s birth injuries and the resulting cerebral palsy. We are fortunate that our children’s financial needs have been taken care of, but we still have the same struggles of finding legal, medical and support resources that all cerebral palsy families need. Two of the ways we are doing this are the Survival Guide for each of the 50 states plus Washington, D.C. and the Care Guide to record your child’s medical and care needs.
The Survival Guides were designed to provide information and resources to assist you and your child with everything from everyday activities to emergency situations. They were developed as a joint effort between a team of medical experts and parents of children with cerebral palsy.
These free publications include national and state-specific resources for:
Education
Medical
Respite & Support
Sports & Recreation
Therapy & Rehabilitative
Transportation
The Care Guide was created to help organize and track important health information and resources for yourself and your child’s other caregivers. It’s like your own medical record. You can write on the pages of this PDF and save it on your computer or print it out to take to doctor or other provider visits.
Live in IL.
Hi, I’m Cherize from Philippines a single mother. I’ m 21 years old. My son has a cerebral palsy..He is 5 years old now..Until now he can’t walk and can’t speak..He has active seizures. Just wanna seek help…It’s so hard and i feel sad for my son..I want him to experience physical therapy and occupational therapy but I can not afford it…Thank you so much