Legal and Medical Resources to Empower Cerebral Palsy Families
1-800-CPFamily (273-2645)
What may look like science fiction is really a true story for two young patients with cerebral palsy. Austin Hammer, 18, of Wyoming, has been using a specialized compression therapy suit that originated with the Soviet space program. And MacKenzie Maher, 13, is learning to walk using a device that belts her into a robot-like machine. How are they doing? Read their stories at “Space Suits, Robotics Help Kids with Cerebral Palsy to Walk.”
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FREE state-specific resource list covering everyday activities to emergency situations.
Organize important information and resources for yourself and other caregivers.
In October, I wrote several articles titled “Diary of a Crisis” about a medical emergency we experienced with our daughter, Danielle. Danielle has suffered from severe spastic quadriplegia cerebral palsy since birth. The past 18 months have been a constant struggle with medical professionals to get answers about our daughter's deteriorating health.
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Birthing classes and many books about pregnancy help parents-to-be prepare for the birth experience and some of their choices, especially when it comes to managing pain. However, few deal with potential complications, preferring to leave that scary ”what if” in the hands of doctors. However, my experience as a practicing obstetrician for more than 20 years is that it’s vitally important for parents to know what standards of care are and how to advocate for themselves and their child if these standards are not being met.
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