CP Alert.Org has developed an extensive list of resources and links to help other families of children with Cerebral Palsy. They are only informational resources. It is important to verify any website content you find with a reliable source.
- Adaptive Technology Resources
- Family, Educational and Support Programs
- Magazines and Publications
- Drugs and Medical Databases
- Neurology and Special Disorders
- Products & Services
- Medical Malpractice Lawyers & Negligence Attorneys
- Life Planning
- Symptoms and Disorders
- Patient Handouts
- Hospitals, Organizations, and Governmental Resources
- Research
- Statistics
- Treatments and Therapy
Adaptive Technology Resources
Access Unlimited - http://www.accessunlimited.com/
At
Access Unlimited we believe that mobility, like people, comes in
all shapes and colors. We celebrate the rich diversity of
our customers’ needs by creating products that allow easy access
to ANY vehicle, from cars and vans to trucks and SUVs.
Adaptive Technology Resource Centre - http://www.utoronto.ca/atrc/index.html
The Adaptive Technology Resource Centre advances information technology
that is accessible to all; through research, development, education,
proactive design consultation and direct service.
Alliance for Technology Access - http://www.ataccess.org/
The Alliance for Technology Access (ATA) is the national network
of community-based Resource Centers, Developers, Vendors, and Associates
dedicated to providing information and support services to children
and adults with disabilities, and increasing their use of standard,
assistive, and information technologies.
Computer Access Center - http://cac.org/
A nonprofit organization serving children and adults with disabilities,
and our community.
EASI—Easy Access to Software and Information - http://www.rit.edu/~easi/
We are committed to using Podcasts, Webinars, online courses and
interactive Internet tools to help institutions make their computer
and information technology resources more accessible to users with
disabilities.
Family Village Shopping Mall - http://familyvillage.wisc.edu/mall.htm
This Accessibility Shopping Mall includes resources for adaptive
products and assistive technology.
International Society for Augmentative & Alternative Communication - http://www.isaac-online.org/select_language.html
ISAAC supports and encourages the best possible communication methods
for people who find communication difficult.
Microsoft Accessibility - http://www.microsoft.com/enable/
Discover accessibility settings that are already on your PC, and
make your computer more comfortable, and easier to see, hear, and
use.
National Registry of Rehabilitation Technology
Suppliers - http://www.nrrts.org/
Search for providers by State or other criterion. NRRTS is dedicated
to ensuring the provision of high quality Rehabilitation Technology
and related services to people with disabilities. All members of
NRRTS meet specific professional membership requirements and agree
to adhere to the Code of Ethics and Standards of Practice of our
organization. The cornerstones of these codes are quality, professionalism
and integrity.
Prentke Romich Company - http://www.prentrom.com/
Prentke Romich Company (PRC) is the worldwide leader in the development
and manufacture of augmentative communication devices, computer access
products, and other assistive technology for people with severe disabilities.
RJ Cooper and Associates - http://www.rjcooper.com/
Special software and hardware products for persons with special
needs.
Voicewave Technology Inc. - http://www.speechenhancer.com/
Makes
a barely audible human voice louder, but also clearer and easier
to understand.
Family, Educational and Support Programs
AHEAD — Association on Higher Education and Disability - http://www.ahead.org/
AHEAD is the premiere professional association committed to full
participation of persons with disabilities in postsecondary education.
American Counsel on Education - http://www.acenet.edu//AM/Template.cfm?Section=Home
ACE, the major coordinating body for all the nation's higher education
institutions, seeks to provide leadership and a unifying voice on
key higher education issues and to influence public policy through
advocacy, research, and program initiatives.
Caregiver Advisory Panel - http://www.caregiversadvisorypanel.com/
The Caregivers Advisory Panel, Inc. (TCAP) provides research on
caregivers to health care manufacturers, caregiver support organizations,
financial services providers, and other organizations interested
in learning from caregivers. Today, TCAP has a database of 25,000
family caregivers and a research panel of thousands of family caregivers
nationwide, with whom it conducts strategically focused, results-driven
market research.
Center on Disabilities - http://www.csun.edu/cod/aboutus.htm
The Center on Disabilities is an integral part of the university
mission of teaching, scholarship and active learning, furthering
the vision of an inclusive society which supports the attainment
of academic, professional and personal goals for persons of all abilities.
The Center fulfills this mission through programs of student service,
education, and research.
The Center for Family, School, and Community - http://www2.edc.org/fsc/
The Center for Family, School, and Community (FSC), strives to empower
families, invigorate schools and curricula, and nurture community
support. Our programs prepare children to become lifelong learners,
productive workers, and responsible members of a pluralistic society.
The Council of Educators for Students with
Disabilities, Inc. - http://www.504idea.org/
Formerly known as TACHO, the Council of Educators (or CESD) is dedicated
to providing information and training to assist educators in complying
with federal laws protecting students with disabilities.
Education Legal Help - http://www.wrightslaw.com/index.htm
Parents, educators, advocates, and attorneys come to Wrightslaw
for accurate, reliable information about special education law, education
law, and advocacy for children with disabilities. Begin your search
for information in the Advocacy Libraries and Law Libraries. You
will find thousands of articles, cases, and free resources about
dozens of topics.
Family Education - http://www.familyeducation.com/home/
Family Education Network is built on a strong foundation of assets
from the international media company, Pearson plc (NYSE:PSO), as
well as educational properties from leading educational publishers
and technology companies.
How Can I Help? - http://members.iinet.com.au/~scarffam/cpa.html
Information for friends and relatives of a child with Cerebral Palsy.
How Can I Help? is reproduced on the World Wide Web with the kind
permission of The Cerebral Palsy Association of Western Australia
Ltd.
Ability Online - http://www.ablelink.org/public/new/index.html
Ability
Online is an extraordinary and absolutely free Internet community.
Here, young people with disabilities and illnesses connect with all
kinds of possibilities that address their needs as curious, growing
citizens of the planet. They meet and chat with other
people like them in a virtual world that transcends boundaries and
barriers. They make friends, get tips from mentors, and freely participate
in an atmosphere of collaboration, companionship and support.
Internet Resources for Special Children - http://www.irsc.org/
The Internet Resources for Special Children (IRSC) web
site is dedicated to children with disabilities
and other health related disorders worldwide.
Ontario Federation for Cerebral Palsy - http://www.ofcp.on.ca/aging.html
The Ontario Federation for Cerebral Palsy is an organization committed
to supporting independence, inclusion, choice and full integration
of all persons with Cerebral Palsy.
Our-Kids Org - http://www.our-kids.org/
Our-Kids is
a "Family" of parents, caregivers
and others who are working with children with physical and/or mental
disabilities and delays. We call the list "Our-Kids".
While it isn't exactingly descriptive, it avoids the pitfalls of
labeling our kids anything but what they most certainly are: The
wonderful little people in our lives.
Schwab Learning Org. - http://www.schwablearning.org/
Schwab
Learning is a nonprofit program of the Charles and Helen Schwab Foundation,
a private foundation. Our mission is to provide information and inspiration
for families whose children struggle with learning and attention
problems. Schwab Learning’s goal
is to help transform, for good, the lives of a significant share
of American children who struggle with learning and attention. Given
accurate information and support, parents and kids can bring about
positive and dramatic changes in their lives. By focusing on a child’s
strengths while addressing his challenges, every child can experience
success in learning and life.
Special Education Resources - http://www.reedmartin.com/specialeducationresources.htm
Collection of links to various resources pertaining to special education
Starlight Starbright Children’s Foundation - http://www.starlight.org/site/c.fuLQK6MMIpG/b.1038035/k.BDF4/Home.htm
Starlight
Starbright helps seriously ill children and their families
cope with their pain, fear and isolation through entertainment,
education and family activities.
The Center for Family, School and Community - http://www.edc.org/FSC/NCIP/
FSC
strengthens schools and school systems so that they foster learning
and development for all students. Working with state and local education
agencies across the country, including many major cities, the center
provides technical assistance, designs intensive professional development
programs that improve teaching and assessment, enhances the leadership
capacity of district and school administrators, engages families
in their children’s education, and assists with community-building
efforts. Our areas of expertise include comprehensive school reform,
middle-level education, literacy development, and tools and strategies
to promote success for students with disabilities.
The Cerebral Palsy Network - http://thecerebralpalsynetwork.org
The Cerebral Palsy Network makes their home in Yakima and Olympia
Washington. Consisting of parents across the globe whom share a similar
situation, Cerebral Palsy. In the past few years we have seen many
members join from across the world, the vision has begun to be realized.
Thanks to our members for sharing this vision. We encourage you to
join us in this burning desire to make a difference in the lives
of our children and ourselves. To have a place to call home and feel
a sanctuary among friends. We encourage parents across the world
to join us in our mission to not only provide these services, but
to also educate all whom cross our threshold. Providing a positive
future for our children we intend only for this to be an effort among
all of us and a brighter future for our children with special needs.
The Rehabilitation Engineering Program at Rancho
Los Amigos National Rehabilitation Center - http://www.ranchorep.org/project-7.htm
Rancho is a public, nonprofit multidisciplinary rehabilitation center
operated by the county of Los Angeles, and located in Downey, California,
ten miles southeast of downtown Los Angeles. The Rehabilitation Engineering
Program (REP) is grant supported and is located on the grounds of
Rancho. The REP would like to thank you for visiting our website
and invites you to look around and see the projects we are working
on.
Therapy/Respite Camps for Kids - http://wmoore.net/therapy.html
Summer camps for kids with special needs. Listed regionally in the
U.S. and includes camps in Canada and Mexico.
Through the Looking Glass - http://lookingglass.org/index.php
Through the Looking Glass (TLG) is a nationally recognized center
that has pioneered research, training, and services for families
in which a child, parent or grandparent has a disability or medical
issue.
Magazines and Publications
Ability Magazine - http://www.abilitymagazine.com/
Magazine containing information and stories dedicated to issues impacting people with disabilities.
Brookes Publishing - http://www.pbrookes.com/
For 29 years, Brookes has published highly respected resources in
early childhood, early intervention, inclusive and special education,
developmental disabilities, learning disabilities, communication
and language, behavior, and mental health.
Cambridge University Press - http://www.cambridge.org/us/
Cambridge University Press publishes the finest academic and educational
writing from around the world and is dedicated to advancing knowledge,
education, learning and research. Since publishing its first work
in 1584, Cambridge now publishes over 2500 titles and 200 journals
every year.
Cerebral Palsy Magazine - http://www.cerebralpalsymagazine.com/
Cerebral Palsy Magazine is currently the only publication in the
country fully dedicated to issues related to Cerebral Palsy.
Emerging Horizons Travel News - http://emerginghorizons.com/
Emerging
Horizons is a consumer oriented magazine about accessible travel.
Emerging Horizons’ primary focus is travel for people
with mobility disabilities; everybody from wheelchair-users to slow
walkers. Lots of access information, resources, news and travel tips.
Enabled Online - http://www.EnabledOnline.com
Enabled Online offers information and stories involving issues that affect people with disabilites
EP Magazine - http://www.eparent.com/
Exceptional Parent Magazine. Information that matters, from people
who care.
Mac Keith Press - http://www.mackeithpress.org/
The leading source of paediatric information publishing on child
neurodisability and developmental medicine
Ragged Edge Online - http://www.ragged-edge-mag.com/
Web site for the disability rights publication formerly known as The Disability Rag.
Special Child - http://www.specialchild.com/index.html
For Parents and Caregivers of Children with Special Needs
Special Child Magazine - http://www.specialchild.com/index.html
For parents and caregivers of children with special needs.
Welcome to New Mobility.Com - http://www.newmobility.com/
The web site for New Mobility Magazine
and the leading online resource for Disability Culture and Lifestyle.
Newmobility.com is a tremendous research and communication tool for
anyone with an interest in disability issues. And note that almost
all our site is accessible without having to log in.
Drugs and Medical Databases
Althena Diagnostics - http://athenadiagnostics.com/content/index.jsp
Athena Diagnostics is a reference laboratory dedicated to the development
and commercialization of diagnostic testing for neurological disorders.
Using innovative technologies, Athena provides neurologists and other
physicians with diagnostic answers that can improve the quality of
health care for patients in a cost effective manner.
Baylor College of Medicine - http://www.bcm.edu/neurol/research/moved/moved6.html
Baylor College of Medicine in Houston, the only private medical
school in the Greater Southwest, was founded in 1900 and is today
an internationally respected medical and research institution known
for excellence in education, research and patient care.
Children’s Neurobiological Solutions - http://www.cnsfoundation.org/site/PageServer
CNS is a nonprofit research foundation improving the lives of children
disabled by neurological disorders through research focused on brain
repair and regeneration.
Digital Anatomist Project - http://www9.biostr.washington.edu/da.html
The original CDs for the brain atlas and the neuroanatomy syllabus
contained many helpful movies, which for various reasons had not
been available in the web atlases. At long last, many of them are
now available. Simply follow the usual movie links within the atlases.
(The movies are in Quicktime format.)
Hyman Newman Institude for Neurology and Neurosurgery - http://nyneurosurgery.org/
Increasing survival rates for children and adults experiencing an
injury or illness in the nervous system has resulted in more people
with permanently dysfunctional nervous systems. In response, numerous
treatments have been developed. Unfortunately, these treatments have
typically been applied by super-specialized providers working in
relative isolation.
Joint Hypermobility Information Site & Forum - http://www.marge.com/hypermobility/
Website focusing on hypermobility that includes a forum for visitors.
This site offers information about our physician staff, and our various clinical, research, educational and continuing educational programs. The Department of Neurology at MGH, chaired by Anne B. Young, MD, PhD, has a long tradition of achieving excellence in adult and pediatric clinical care, teaching and research.
Medline Plus - http://www.nlm.nih.gov/medlineplus/cerebralpalsy.html
Government site with information on Cerebral Palsy from several
different sources. For the general public
National Center on Physical Activity and Disability - http://www.ncpad.org/
Some excellent studies and information regarding the benefit of
exercise/activity for the differently abled individual.
NeuroCast - http://www.neurocast.com/site/content/sessions_Dystonia.asp
NeuroCAST is an innovative, internet-based educational program designed
to bring you current information about important issues in the early
and accurate diagnosis of neurological disease.
Neuromuscular Disease Center - http://www.neuro.wustl.edu/neuromuscular/nother/bot.htm
Medical database
Pediatric Neurotransmitter Disease Association - http://www.pndassoc.org/site/c.iuLWJdMRKpH/b.593219/k.9FC7/PND_Association.htm
The PND association is a disease organization representing children and families who are affected by a pediatric neurotransmitter disease.
RxList - http://www.rxlist.com/cgi/generic/baclofen.htm
Special Needs Center - http://www.lafn.org/medical/special_needs/
The PSL Group - http://www.pslgroup.com/dg/9946.htm
P\S\L Group is a global organisation dedicated to putting information
at the service of medicine. The companies and people of the P\S\L
Group aim to improve medical care by serving those who need it, those
who provide it and those who seek to improve it.
The Whole Brain Atlas - http://www.med.harvard.edu/AANLIB/home.html
U.S. Food and Drug Administration — Center for Drug Evaluation and Research - http://www.fda.gov/cder/
Virtual Hospital - http://www.vh.org/Providers/Textbooks/AIS/AIS.html
University of Iowa and the Virtual Hospital
WeMove.Org - http://wemove.org/ss_step1.html
Information site for the professional, patient and/or parent. Covers the "latest" clinical
advances and management in movement disorders.
Yahoo! - HealthDiseases and Conditions--Cerebral
Palsy Search - http://dir.yahoo.com/Health/diseases_and_conditions/cerebral_palsy/
Neurology and Special Disorders
National Institute of Neurological Disorders
and Stroke - http://www.ninds.nih.gov/disorders/cerebral_palsy/detail_cerebral_palsy.htm
The mission of NINDS is to reduce the burden of neurological disease
- a burden borne by every age group, by every segment of society,
by people all over the world
National Organization for Rare Disorders - http://www.rarediseases.org/
The
National Organization for Rare Disorders (NORD), a 501(c)3 organization,
is a unique federation of voluntary health organizations dedicated
to helping people with rare "orphan" diseases and assisting
the organizations that serve them. NORD is committed to the identification,
treatment, and cure of rare disorders through programs of education,
advocacy, research, and service.
Products & Services
Adaptive Mall - http://www.adaptivemall.com/
The Adaptivemall.com® understands the challenges that
you face while caring for someone with special needs. We serve every
customer with this concern in mind while helping families find the
best equipment to support their children at their highest functioning
level.
Advanced Orthotic Designs Inc - http://www.aodmobility.com/
Advanced Orthotic Designs(AOD) is a Canadian company that specializes in the design, fabrication and fitting of complex orthopedic devices for persons with physical disabilities.
Aloe Vera Studies Group - http://www.aloe-vera.org/
You probably already know how good aloe vera is for your skin. Did
you also know it is one of the most vitamin and mineral-packed nutrition
drinks that you can find?
Amputee Treatment Center - http://www.amputee-center.com/
Amputee Treatment Center recently celebrated their twenty-fifth
year in business in Batavia and strives to provide the best quality
care and innovative products for individuals with amputations and
physical disabilities. We provide a full range of prosthetic devices
(artificial limbs) for upper and lower extremity amputees and for
any age or ability from geriatric to athlete. Our facility includes
exam rooms and a full laboratory as all orthopedic appliances (braces)
and prosthetic devices are custom-made to a cast of the patient and
are fabricated on-site. Accepting new patients
Baby Jogger - http://www.babyjogger.com/
Baby Jogger invented the first jogging stroller more then 20 years ago and
has continued to bring only the safest, most innovative, high-quality
products to market since day one.
Braun Ability -http://braunlift.com/
The
Braun Corporation has remained a pioneer in the mobility industry
since 1963. With a reputation for innovative design and quality craftsmanship,
wheelchair and scooter users the world over depend on Braun for their
personal mobility every day. With Ralph Braun still at the helm of
the company and the industry he created, the original mission of "Providing
Access to the World" endures.
Browne’s New Balance - http://www.brownsnewbalance.com/
Foot pads and such for various conditions
Cascade - http://www.dafo.com/
Orthotics and Prosthetics
Columbia Medical - http://www.columbiamedical.com/
Columbia Medical provides unique products for people with physical
disabilities. For such children and adults, our products are life-quality
enhancing. Our goal is to supply products to people with disabilities
that fill the needs that have not been met by others.
Convaid Inc. - http://www.convaid.com/
Convaid Inc. - Dedicated to Helping Others Since 1976, Convaid has
been dedicated to helping children with special needs. Convaid's
mission is to be sensitive to the broad needs of physically challenged
children, and just as important, sensitive to the needs of the caregivers.
We aim to provide the best combination of corrective positioning,
comfort, durability and safety for the child, in a product that is
both attractive and very easy and convenient to use by the caregiver.
Erhardt Developmental Products - http://home.att.net/~rperhardtdp/home.html
Videos and other Materials about Child Development and Children
with Disabilities.
The SMART Walker ™is the latest development in gait training devices.The device provides a means of hands-free upright mobility and gait training for children with or similar conditions that otherwise would not be able to walk.
Innovative Products INC. - http://www.iphope.com/
Innovative Products Inc. is a manufacturing company that specializes
in custom built mobility devices for children with disabilities.
In addition to our manufacturing plant, we offer a variety of products
that can help your quality of life.
Mobility International USA - http://www.miusa.org/
Empowering people with disabilities around the world to achieve
their human rights through international exchange and international
development.
Mobility Products - http://www.makoa.org/mobility.htm
Movement Educators - http://www.movement-educators.com/
Movement Educators conduct Feldenkrais®Professional
Training Programs. They also organize other Feldenkrais®-based
programs with an intensive approach. These intensive programs appeal
to a large variety of people who are interested in improving their
movement skills including people with neuromotor difficulties (i.e.
Cerebral Palsy and strokes), chronic pain, injuries as well as
musicians, actors, dancers, athletes and martial artists.
National Highway Traffic Safety Administration - http://www.nhtsa.dot.gov/
Agency responsible for regulating the manufacture of disability
modified vehicles.
Natural Access - http://www.natural-access.com/
Introducing Landeez, the all-terrain and beach wheelchair
that is reshaping the lives of people around the world. Until now,
wheelchairs could not provide access to the most beautiful areas
of parks and beaches. Thanks to the Landeez all-terrain wheelchair,
all of that has changed.
NON-Chew Cookbook - http://www.beyondfear.org/selfhelp/non_chew.asp
The NON CHEW COOKBOOK was written for people suffering from chewing,
swallowing and dry mouth disorders. The cookbook has received many
endorsements from a wide variety of medical professionals. Caregivers
are also becoming increasingly interested in these recipes to serve
the aging population.
Plum Enterprises - http://www.plument.com/
Plum’s mission is to prolong and enhance the quality of your
life. Our passion is to replace fear with freedom, safety and empowerment. Plum
leads the way in falls safety, protective headgear, hip protectors
and extremity guards, so little ones can stay active, adults independent,
and caregivers can enjoy peace of mind.
Real Design Inc. - http://www.realdesigninc.com/
Seating systems, gait trainers, positioning wedges, and wheelchair
tables, special needs equipment. Online shopping available.
Rifton - http://www.rifton.com/
Both Rifton Equipment and sister company Community
Playthings are based in the USA (NY and PA). Community Playthings
started in 1947, making furniture and toys for schools and child
care centers.
Tumble Forms - http://www.sammonspreston.com/tumbleforms.asp
Pediatric products for positioning, seating and mobility.
Vantage Minivans - http://www.vantageminivans.com/
Since opening our doors more than 18 years ago, we've continued
to explore new ways to give our customers the freedom to experience,
explore and enjoy an active, mobile lifestyle. Our efforts have produced
the most reliable, highest quality and most easily accessible transportation
in the world.
Medical Malpractice Lawyers & Negligence
Attorneys
Med Law Legal Team — Janet Jenner & Suggs - http://www.medlawlegalteam.com/
The
MEDLAW Legal Team of Janet, Jenner & Suggs, LLC is
a nationally recognized law firm dedicated to representing victims
of medical malpractice and negligently manufactured and marketed
prescription drugs. To maximize our ability to recover substantial
damages for the seriously injured, our team of accomplished attorneys
includes a board-certified M.D. and registered nurses.
The Able Trust - http://www.abletrust.org/
The Able Trust, also known as the Florida Governor's Alliance for
the Employment of Citizens with Disabilities, is a 501(c)(3) public-private
partnership foundation established by the Florida Legislature in
1990. Its mission is to be the leader in providing Floridians with
disabilities fair employment opportunities through fundraising, grant
programs, public awareness and education.
Impact Online - http://www.impactcil.org/
IMPACT
promotes pride and respect for people with disabilities by sharing
the tools that are necessary to take control of one’s
own life. IMPACT advocates full community participation, with supports,
of all citizens.
Ability Online - http://www.ablelink.org/
Here, young people with disabilities and illnesses connect with all kinds of possibilities that address their needs as curious, growing citizens of the planet.
Symptoms and Disorders
Ability Square - http://www.geocities.com/Athens/Cyprus/8795/
Ability Square's mission is to create a community built on understanding
and acceptance where we use our abilities to educate others on disabilities,
their issues, and how they affect those that live with them.
ADA - Americans with Disabilities Act - http://ada.gov/
Information and resources pertaining to the ADA.
Adminsitration on Developmental Disabilities (ADD) - http://www.acf.dhhs.gov/programs/add/
The Administration on Developmental Disabilities ensures that individuals
with developmental disabilities and their families participate in
the design of and have access to culturally competent services, supports,
and other assistance and opportunities that promotes independence,
productivity, and integration and inclusion into the community.
Cerebral Palsy Resources - http://www.esmerel.org/specific/cp.htm
This page is for disability resources that are dedicated to Cerebral Palsy.
disABILITY Information and Resources - http://www.makoa.org/index.htm
The pages here were created and are maintained solely by Jim Lubin, who is a C2 quadriplegic, completely paralyzed from the neck down and dependent on a ventilator to breath.
DisabilityResources.org - http://www.disabilityresources.org/
Disability Resources, inc. is a nonprofit 501(c)(3) organization
established to promote and improve awareness, availability and accessibility
of information that can help people with disabilities live, learn,
love, work and play independently.
Division of Developmental Disabilities — Washington State
- http://www1.dshs.wa.gov/ddd/index.shtml
The mission of the Division of Developmental Disabilities (DDD)
is to endeavor to make a positive difference in the lives of people
eligible for services, through offering quality supports and services
that are: individual/family driven; stable and flexible; satisfying
to the person and their family; and able to meet individual needs.
Supports and services shall be offered in ways that ensure people
have the necessary information to make decisions about their options
and provide optimum opportunities for success.
Illinois Department of Human Services - http://www.dhs.state.il.us/
DHS helps Illinois families achieve self-sufficiency, independence
and health to the maximum extent possible.
International Disability News Tracker - http://www.abilityinfo.com/ticker/americas.html
Disability-themed news from around the world.
LD Online - http://www.ldonline.org
LD OnLine.org is the world's leading web site on learning disabilities
and ADHD, serving more than 250,000 parents, teachers, and other
professionals each month.
Lissencephaly Network - http://www.lissencephaly.org/
This web site is
provided for the parents, siblings, physicians and therapists of
children born with lissencephaly (smooth brain), and other neuronal
migration disorders.
National Council on Disability (NCD) - http://www.ncd.gov/
The National Council on Disability (NCD) is an independent federal
agency making recommendations to the President and Congress to enhance
the quality of life for all Americans with disabilities and their
families. NCD is composed of 15 members appointed by the President
and confirmed by the U.S. Senate. In its 1986 report Toward Independence,
NCD first proposed that Congress should enact a civil rights law
for people with disabilities. In 1990, the Americans with Disabilities
Act was signed into law.
National Dissemination Center for Children with Disabilities (NICHCY) - http://www.nichcy.org/index.html
Neurological Disorders, Cerebral Palsy - http://www.irsc.org:8080/irsc/irscmain.nsf/sub?readform&cat=Neurological+
Disorders&subcat=Cerebral+Palsy&type=Web+Pages
NICHCY stands for the National Dissemination Center for Children
with Disabilities. We serve the nation as a central source of information
on:
- disabilities in infants, toddlers, children, and youth,
- IDEA, which is the law authorizing special education,
- No Child Left Behind (as it relates to children with disabilities), and
- research-based information on effective educational practices.
Stool Withholding and Constipation in Children - http://askwaltstollmd.com/cons.html
This is a terrible problem as anyone who has had a child with it
will attest. It is an excellent example of how a comprehensive approach
to stool withholding is nearly always effective when the conventional
medical approach almost always fails.
The Wellness Community Nutrition Handook (PDF) - http://www.thewellnesscommunity.org/virtual_wc/nutrition_
handbook/Nutrition_Handbook.pdf
A PDF nutrition handbook provided by The Wellness Community
Education information and resources for people with disabilities.WGBH Services for People with Diasabilities - http://main.wgbh.org/wgbh/access/
People who are deaf, hard-of-hearing, blind, or visually impaired like to watch television as much as anyone else. It just wasn't all that useful for them...until WGBH invented TV captioning and video descriptions.
When your child needs to gain weight - http://www.specialfoods.com/weight.html
Regaining
weight is particularly important for a growing child, and can be
particularly difficult because of the dual needs occurring at the
same time — the need to regain weight and the need to
grow. It is somewhat like chasing a moving target. Fats are needed
for neurological development, proteins are needed for muscle growth,
and carbohydrates are needed for energy, among other things. Therefore, although
total calories are important, it is equally important to achieve
the total number of calories with balanced quantities of carbohydrates,
fats and proteins.
Patient Handouts
Connecticut Children’s Medical Center - http://www.ccmckids.org/
It's the only medical center in the state that's 100% focused on
caring for children, from babies to teens. Around here, we understand
kids - what interests them, what frightens them, what helps them
heal. Take a look around. And see the difference.
American Orthopedic Foot and Ankle Society - http://www.aofas.org/i4a/pages/index.cfm?pageid=1
The American Orthopaedic Foot & Ankle Society welcomes
you, both patients and physicians, to our Web site. The AOFAS
is the national medical specialty society for orthopedic surgeons
with special training and interest in the prevention and treatment
of foot and ankle conditions.
Virtual Children’s Hospital - http://www.vh.org/Patients/IHB/Ortho/Peds/HipSpica/HipSpicaCast.html
Quality health information has been the hallmark of Virtual HospitalŽ and Virtual Children's HospitalŽ since the early 1990s when www.vh.org was among the first sites on the Internet
The Movement Disorder Virtual University is the healthcare professional's source for movement disorder news, resources and educational activities. MDVU is brought to you by WE MOVE, a not-for-profit organization that has been educating and informing the movement disorder community for over a decade. WE MOVE believes that increased knowledge and understanding promote timely, accurate diagnosis and up-to-date treatment, resulting in a better quality of life for individuals affected by movement disorders.
National Ataxia Foundation - http://www.ataxia.org/resources/generations.aspx
The National Ataxia Foundation is dedicated to improving the lives
of persons affected by ataxia through support, education, and research.
Neuromuscular Disease Center - http://www.neuro.wustl.edu/neuromuscular/
Searchable database of neuromuscular diseases
Pathology of Developmental Syndromes - http://www.aacpdm.org/index?service=page/libraryByTopic&topicIndex=8
Webpage displaying links offering background information on CP.
National Institute of Neurological Disorders and Stroke - http://www.ninds.nih.gov/
The mission of NINDS is to reduce the burden of neurological disease
- a burden borne by every age group, by every segment of society,
by people all over the world
LD Online - http://www.ldonline.org/ccldinfo/index.html
LD OnLine.org is the world's leading web site on learning disabilities
and ADHD, serving more than 250,000 parents, teachers, and other
professionals each month.
Center for Disease Control and Prevention - http://www.cdc.gov/nchs/
The CDC is recognized around the world as a leading force in public health
expertise. Dr. Joseph W. Mountin, founder of the original Communicable Disease
Center, was a visionary public health leader with high hopes for this small
and, at that time, relatively insignificant branch of the Public Health Service.
The agency, which grew out of the Malaria Control in War Areas, occupied
one floor of the Volunteer Building on Peachtree Street near downtown Atlanta
and had fewer than 400 employees. The new institution expanded its focus
to include all communicable diseases and to provide practical help to state
health departments when requested.
National Association for Child Development - http://www.nacd.org/
NACD provides neurodevelopmental evaluations and individualized
programs for children and adults, updated on a quarterly basis. As
a family-centered organization, NACD stresses parent training and
parent implementation of the program. NACD is an eclectic organization,
gathering and utilizing the newest strategies that yield success
and incorporating them into programs custom-designed for each client.
Support is provided to families through video reviews, e-mail and
telephone sessions. Through frequent contact with staff and other
families, parents are well informed and well educated in relationship
to their child’s progress. NACD chapters can be found across
the United States. International locations include the Bahamas, India
and Guatemala. International services are also provided through videotaping
and phone conferences.
Polands-Syndrome - http://www.polands-syndrome.com/
Polands-Syndrome.com was started in 1997 to collect and share information on
Poland's Syndrome, an extremely rare, sporatic congenital deformity with
an as yet undetermined cause. It affects only one side of the body and is
characterized by a missing pectoral muscle and a smaller-than-normal hand
that may also have shorted, fused or "webbed" fingers.
Canadian Pediatric Society - http://www.cps.ca/english/statements/N/n94-04.htm
The Canadian Pediatric Society is the national association of pediatricians,
committed to working together to advance the health of children and
youth by nurturing excellence in health care, advocacy, education,
research and support of its membership.
Washington University School of Medicine - http://thalamus.wustl.edu/course/
An illustrated guide to the essential basics of clinical neuroscience
created in conjunction with the first-year course for medical students.
Society for Neuroscience - http://www.sfn.org/index.cfm?pagename=brainBriefings_main
The Society for Neuroscience is a nonprofit membership organization
of basic scientists and physicians who study the brain and nervous
system. Recognizing the field's tremendous potential, the Society
was formed in 1969. It has grown from 500 members to nearly 37,000
and is the world's largest organization of scientists devoted to
the study of the brain.
World Arnold Chiari Malformation Association - http://www.pressenter.com/~wacma/Staffed by volunteers, the World Arnold Chiari Malformation Association is committed to providing support, current information, and understanding to those affected by the Arnold Chiari malformation and syringomyelia.
Dolan DNA Learning Center - http://www.ygyh.org/
Excellent Web Site with great graphics. Emphasis is on Clinical
Applicatiions of Inherited Neuromuscular Disorders.
Sotos Syndrome Support Association - http://www.well.com/user/sssa/
Organized in 1988, the Sotos Syndrome Support Association (SSSA) is made up
of families, physicians, genetic counselors, and health care agencies throughout
the United States. The SSSA is a non-profit organization which is incorporated
in the state of Missouri.
Tourette Syndrome Association - http://www.tsa-usa.org/
Founded in 1972 in Bayside New York, TSA is the only national voluntary
non-profit membership organization in this field. Our
mission is to identify the cause of, find the cure for and control
the effects of Tourette Syndrome. We offer resources and referrals
to help people and their families cope with the problems that occur
with TS. We raise public awareness and counter media stereotypes
about TS. Our membership includes individuals, families, relatives,
and medical and allied professionals working in the field
University of Michigan - http://www.med.umich.edu/hsp/
Excellence in patient care, medical education and research...that's what defines
the University of Michigan Health System.
Hospitals, Organizations, and Governmental Resources
3D Ultrasound Gives Better View Of Brain’s Arteries - http://www.pslgroup.com/dg/350ae.htm
Instead of putting patients on an operating table for invasive imaging
procedures such as cerebral angiography, physicians who use ultrasound
can wheel a scanner bedside and obtain 3D images of the brain’s
arteries.
AACPDM - http://www.aacpdm.org/index?service=page/Home
Welcome to the Home Page of the American Academy for Cerebral Palsy
and Developmental Medicine (AACPDM)
American Academy of Orthopedic Surgeons - http://www.aaos.org/
American Academy of Pediatrics - http://www.aap.org/
An organization of 60,000 pediatricians committed to the attainment
of optimal physical, mental, and social health and well-being for
all infants, children, adolescents, and young adults.
American Orthopaedic Foot and Ankle Society - http://www.aofas.org/i4a/pages/index.cfm?pageid=1
The American Orthopaedic Foot & Ankle Society welcomes you, both patients
and physicians, to our Web site. The AOFAS is the national medical specialty
society for orthopaedic surgeons with special training and interest in the
prevention and treatment of foot and ankle conditions.
American Physical Therapy Association (APTA) - http://www.apta.org//AM/Template.cfm?Section=Home
The American Physical Therapy Association (APTA) is a national professional
organization representing more than 66,000 members. Its goal is to
foster advancements in physical therapy practice, research, and education.
American Speech Language Hearing Association - http://www.asha.org/default.htm
ASHA is the professional, scientific, and credentialing association
for more than 127,000 members and affiliates who are audiologists,
speech-language pathologists, and speech, language, and hearing scientists.
Believe in Tomorrow Children's Foundation - http://www.believeintomorrow.org/
Believe In Tomorrow provides exceptional hospital and retreat housing
services to critically ill children and their families. We believe
in keeping families together during a child’s medical crisis,
and that the gentle cadence of normal family life has a powerful
influence on the healing process.
Brain Briefings - http://www.sfn.org/index.cfm?pagename=brainBriefings_main
A series of two-page newsletters explaining how basic neuroscience
discoveries lead to clinical applications - The Society of Neuroscience.
Centers for Disease Control and Prevention - http://www.cdc.gov/default.htm
Read about rare infectious diseases here.
Cerebral Palsy Information Central - http://www.geocities.com/aneecp/
Here at the CPIC, we strive to provide you with the most complete information
dealing with Cerebral Palsy. Our information is geared toward individuals
with CP, families affected by CP, and just those trying to learn more.
Cerebral Palsy: Hope Through Research - http://www.ninds.nih.gov/disorders/cerebral_palsy/detail_
cerebral_palsy.htm#88003104
Cerebral Palsy: Hope Through Research, an online brochure describing
what Cerebral Palsy is, its causes, its treatments, and how it might
possibly be prevented.
Charcot Marie Tooth Association - http://www.charcot-marie-tooth.org/
The CMTA is a 501(C)(3)nonprofit organization founded in 1983 whose
goals are patient support, public education, promotion of research
and ultimately the treatment and cure of CMT. A voluntary Board of
Directors governs the CMTA. The Medical Advisory Board of the CMTA
consists of over 50 clinical and research medical professionals.
This international group of men and women are noted CMT experts in
neurology, genetics, orthopedic surgery, physiatry, physical therapy
and podiatry.
Connecticut Children’s Hospital - http://www.ccmckids.org/
It's the only medical center in the state that's 100% focused on
caring for children, from babies to teens. Around here, we understand
kids - what interests them, what frightens them, what helps them
heal. Take a look around. And see the difference
Developmental Behavioral Pediatrics Online - http://www.dbpeds.org/
This site is aimed at professionals interested in child development
and behavior, especially in the medical setting
Division for Early Childhood - http://www.dec-sped.org/
The Division for Early Childhood promotes polices and advances evidence-based
practices that support families and enhance the optimal development
of young children who have or are at risk for developmental delays
and disabilities.
Epilepsy (Washington University) - http://www.neuro.wustl.edu/epilepsy/index.html
Gene Found For Crippling Neurologic Disorder - http://www.pslgroup.com/dg/366de.htm
A research team led by investigators from the Massachusetts General
Hospital (MGH) has identified and cloned the gene responsible for
early-onset dystonia, a crippling, inherited neurological disorder
that begins in childhood.
Hemi-Kids - http://hemikids.org/
Hemi-Kids is an email support group where parents of children
who have hemiplegia or hemiplegic Cerebral Palsy share support
and information.
Hereditary spastic paraplegia - http://www.med.umich.edu/hsp/
Committed to finding the causes and developing treatments for hereditary
spastic paraplegia. This information is provided for individuals
with HSP, their family members, health care providers, and other
investigators. Working together, we can discover treatments to prevent,
reverse, and retard the progression of this condition.
Fragile X Foundation - http://www.cfxf.org
Fragile X syndrome is the leading hereditary cause of developmental disabilities
in all populations. The absence of a functional fragile X gene shuts off
production of a special protein in the brain needed for normal cognitive
development. Without this protein, children with the syndrome will never
learn normally, despite hours of therapy and rehabilitation.
National Association of Disability Examiners (NADE) - http://www.nade.org/
NADE's Purpose: To develop the art and science of disability evaluation.
To enhance public awareness about disability evaluation. To further
professional recognition for disability evaluation practitioners.
International Rett Syndrome Association - http://www.rettsyndrome.org/
The International Rett Syndrome Association is the only organization
dedicated to providing families with the latest medical information,
aggressively funding the most promising research, offering meaningful
support, and raising public awareness and advocating for those living
with the neurological disorder called Rett syndrome.
LD Online - http://www.ldonline.org/about/
LD Online.org is the world's leading website on learning disabilities
and ADHD, serving more than 250,000 parents, teachers, and other
professionals each month.
Make A Wish - http://www.wish.org/
"Welcome to Wish.org, the online home of the nation’s
largest wish-granting organization. Since 1980, the Make-A-Wish Foundation® has
given hope, strength and joy to children with life-threatening medical
conditions. From our humble beginnings with one boy’s wish
to be a police officer, we’ve evolved into an organization
that grants a child’s wish in the U.S. every 41 minutes."
MD Virtual University - http://www.mdvu.org/library/pediatric/
The Movement Disorder Virtual University is the healthcare professional's
source for movement disorder news, resources and educational activities.
MDVU is brought to you by WE MOVE, a not-for-profit organization
that has been educating and informing the movement disorder community
for over a decade. WE MOVE believes that increased knowledge and
understanding promote timely, accurate diagnosis and up-to-date treatment,
resulting in a better quality of life for individuals affected by
movement disorders.
Mental Retardation: A Symptom And A Syndrome - http://www.uab.edu/cogdev/mentreta.htm
The objective of this website is to provide the reader with an overview
of mental retardation, a developmental disability with a long and
sometimes controversial history. Following a brief historical overview,
the current diagnostic criteria, epidemiological information and
the status of dual diagnosis will be presented. Comprehensive assessment
and common interventions will also be reviewed in some detail.
Muscular Dystrophy Association - http://www.mdausa.org/
National voluntary health agency dedicated to conquering more then
40 neuromuscular diseases that affect a million Americans.
NACD:The National Association for Child Development - http://www.nacd.org/
NACD provides neurodevelopmental evaluations and individualized
programs for children and adults, updated on a quarterly basis. As
a family-centered organization, NACD stresses parent training and
parent implementation of the program. NACD is an eclectic organization,
gathering and utilizing the newest strategies that yield success
and incorporating them into programs custom-designed for each client.
Support is provided to families through video reviews, e-mail and
telephone sessions. Through frequent contact with staff and other
families, parents are well informed and well educated in relationship
to their child’s progress. NACD chapters can be found across
the United States. International locations include the Bahamas, India
and Guatemala. International services are also provided through videotaping
and phone conferences.
National Ataxia Foundation - http://www.ataxia.org/resources/generations.aspx
The National Ataxia Foundation is dedicated to improving the lives
of persons affected by ataxia through support, education, and research.
National Disability Sports Alliance - http://www.ndsaonline.org/
The National Disability Sports Alliance (NDSA) is the
National Coordinating Body for competitive sports for individuals with , traumatic brain injuries and survivors of stroke. NDSA was originally
formed as the United States Cerebral Palsy Athletic Association (USCPAA)
in 1987. NDSA also provides programming for other physically disabling conditions
such as muscular dystrophy and multiple sclerosis.
National Dissemination Center for Children with Disabilities - http://www.nichcy.org/index.html
We serve the nation as a central source of information on:
- disabilities in infants, toddlers, children, and youth,
- IDEA, which is the law authorizing special education,
- No Child Left Behind (as it relates to children with disabilities), and
- research-based information on effective educational practices.
National Down Syndrome Society - http://www.ndss.org/
The National Down Syndrome Society envisions a world in which all
people with Down syndrome have the opportunity to realize their life
aspirations. NDSS is committed to being the national leader in enhancing
the quality of life, and realizing the potential of all people with
Down syndrome.
National Highway Traffic Safety Administration - http://www.nhtsa.dot.gov/
Agency responsible for regulating the manufacture of disability
modified vehicles
National Institute of Neurological Disorders and Stroke - http://www.ninds.nih.gov/
The NIH National Institute of Neurological Disorders and Stroke
(NINDS) provides information and resources on a wide range of neurological disorders, such as CP.
National Library of Medicine - http://www.nlm.nih.gov/
The National Library of Medicine (NLM), on the campus of the National
Institutes of Health in Bethesda, Maryland, is the world's largest
medical library. The Library collects materials and provides information
and research services in all areas of biomedicine and health care.NADE
- National Association of Disability Examiners
National Marfan Foundation - http://www.marfan.org/nmf/index.jsp
The National Marfan Foundation is dedicated to saving lives, and
improving the quality of life for individuals and families affected
by the Marfan syndrome and related disorders.
National Osteoporosis Foundation - http://www.nof.org/
Established in 1984, the National Osteoporosis Foundation (NOF)
is the nation’s leading voluntary health organization solely
dedicated to osteoporosis and bone health.
National Center for Biotechnological Information - http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?DB=pubmed
PubMed, available via the NCBI Entrez retrieval system, was developed
by the National Center for Biotechnology Information (NCBI) at the
National Library of Medicine (NLM), located at the U.S. National
Institutes of Health (NIH). Entrez is the text-based search
and retrieval system used at NCBI for services including PubMed,
Nucleotide and Protein Sequences, Protein Structures, Complete Genomes,
Taxonomy, OMIM, and many others. PubMed provides access to
citations from biomedical literature. LinkOut provides access to
full-text articles at journal Web sites and other related Web resources.
PubMed also provides access and links to the other Entrez molecular
biology resources.
Neuromuscular Disease Center - http://www.neuro.wustl.edu/neuromuscular/
Medical Database of Neuromuscular Information
Neuroscience Tutorial - http://thalamus.wustl.edu/course/
An illustrated guide to the essential basics of clinical neuroscience.
Office of the Clerk —US House of Representatives - http://clerk.house.gov/
Listing for the clerks office and schedule of events
Paralysis Resource Center - http://www.paralysis.org/site/c.erJMJUOxFmH/b.1169107/k.BE3A/Home.htm
The Christopher and Dana Reeve Foundation Paralysis Resource Center
(PRC) promotes the health and well-being of people living with a
spinal cord injury, mobility impairment and paralysis by providing
comprehensive information, resources and referral services.
Pediatric Stroke Network - http://www.pediatricstrokenetwork.com/
The first support group for pediatric stroke to register with the
American Heart Association.
Poland's Syndrome - http://www.polands-syndrome.com/
Poland's Syndrome is described as an absence or underdevelopment
of the chest muscle (pectoralis) on one side of the body and webbing
of the fingers (cutaneous syndactyly) of the hand on the same side
(ipsilateral hand).
Prader-Willi Syndrome Association - http://www.pwsausa.org/
An organization of parents and others who are making a difference
in the lives of those with Prader-Willi Syndrome.
Scope - http://www.scope.org.uk/index.shtml
Welcome to Scope the disability organization in England and Wales
whose focus is people with Cerebral Palsy. Our aim is that disabled
people achieve equality: a society in which they are as valued and
have the same human and civil rights as everyone else.
Study links neonatal thyroid function to Cerebral Palsy - http://www.os.dhhs.gov/news/press/1996pres/960327.html
Scientists have linked low levels of a thyroid hormone in premature
infants to the development of disabling Cerebral Palsy. They examined
more than 400 premature infants screened for blood levels of the
hormone thyroxine during the first week of life. They found that
infants with low levels of thyroxine at birth had a 3- to 4-fold
increase in the incidence of disabling Cerebral Palsy at age 2.
The Arc - http://www.thearc.org/NetCommunity/Page.aspx?&pid=183&srcid=-2
Founded more than 50 years ago by a small group of parents and other
concerned individuals, when little was known about the condition
of mental retardation or its causes, The Arc today is the world’s
largest grassroots organization of and for people with intellectual
and developmental disabilities. With over 140,000 members affiliated
through more than 850 state and local chapters across the nation,
The Arc is devoted to promoting and improving supports and services
for all people with intellectual and developmental disabilities.
The Cerebral Palsy Group - http://www.thecpgroup.org/#content
The Lissencephaly Network Inc. - http://www.lissencephaly.org/
This web site is provided for the parents, siblings, physicians
and therapists of children born with lissencephaly (smooth brain),
and other neuronal migration disorders. Browse this site for information
on lissencephaly, advice on dealing with the many issues that will
become commonplace in your life, and stories from parents and siblings
on the lissencephaly experience.
UK Cogenital Hypotonia Website - http://freespace.virgin.net/bch.hypotonia/
This site aims to provide information on hypotonia in general and how it can
affect your child; some ideas on diagnoses your peadiatrician might be looking
for; testing procedures; and above all, personal experiences.
Undernutrition in children with a neurodevelopmental disability - http://www.cps.ca/english/statements/N/n94-04.htm
Offers guidelines for optimal nutritional care in children with
a neurodevelopmental disability and an associated impairment in their
ability to eat and drink.
United States House of Representatives - http://www.house.gov/house/MemberWWW.shtml
Listing of all the Representatives
United States Senate - http://www.senate.gov/general/contact_information/senators_cfm.cfm
Listing of the Senators of the 110th Congress
Virtual Hospital Organization - http://www.vh.org/Patients/IHB/Ortho/Peds/HipSpica/HipSpicaCast.html
Virtual Hospital / Virtual Children's Hospital, the Internet's first
medical Web sites
World Arnold Chiari Malformation Association - http://www.pressenter.com/~wacma/
The World Arnold Chiari Malformation Association is committed to
providing support, current information, and understanding to those
affected by the Arnold Chiari malformation and syringomyelia.
Research
Dana Foundation - http://www.dana.org/default.aspx
The Dana Foundation is a private philanthropy with principal interests
in brain science, immunology, and arts education. Charles A. Dana,
a New York State legislator, industrialist and philanthropist.
Human Neural Stem Cells Advance Distant Prospect
Of Reseeding Damaged Brain - http://www.eurekalert.org/pub_releases/1999-01/HMS-HNSC-250199.php
Like many students of the human brain, Evan Snyder for years has
helped finance and publish his work on mice by arguing that it might
yield important insights into the human organ's development and disease.
Few scientists ever get to redeem that promise.
Institute for Child Health Policy (ICHP) - http://www.ichp.edu/
The Institute for Child Health Policy is a unique, multi-disciplinary
academic unit of the University of Florida. Our work centers on issues
of health and health care for children and youth. Faculty at the
Institute for Child Health Policy maintain joint appointments in
the College of Medicine Department of Pediatrics and Department of
Epidemiology and Health Policy Research. Institute faculty and staff
are engaged in multiple research and evaluation studies as well as
policy and program initiatives throughout the College of Medicine
and the Health Sciences Center. Because we are an academic unit at
the University of Florida, students working at the Institute for
Child Health Policy are provided with integration into new and existing
research, evaluation, and policy related projects.
National Center for Biotechnology Information - http://www.ncbi.nlm.nih.gov/
Established in 1988 as a national resource for molecular biology
information, NCBI creates public databases, conducts research in
computational biology, develops software tools for analyzing genome
data, and disseminates biomedical information - all for the better
understanding of molecular processes affecting human health and disease.
National Organization for Rare Disorders - http://www.rarediseases.org/
NORD is a unique federation of individuals and organizations working
together to build a better world for people affected by rare diseases.
North American Growth in Cerebral Palsy Project (NAGCePP) - http://www.healthsystem.virginia.edu/Internet/NAGCePP/home.cfm
Children with Cerebral Palsy often do not grow the same as other
children. Children with CP are often shorter and thinner than other
children of the same age. We do not know if this is normal, or if
there could be a problem with nutrition or hormones, and so we are
interested in discovering what is just right for a child with CP.
The first step in understanding growth in Cerebral Palsy is to measure
a large group of children with CP.
Phenobarbital Fails To Prevent Brain Bleeding In Premature Infants - http://www.pslgroup.com/dg/353ca.htm
Phenobarbital -- once thought to be a promising treatment for preventing
bleeding in the brains of premature infants when given to pregnant
women at risk of premature delivery -- appears to be ineffective,
according to the largest, most comprehensive clinical trial of its
kind to date.
PubMed - http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
PubMed is a service of the U.S. National Library of Medicine that
includes over 17 million citations from MEDLINE and other life science
journals for biomedical articles back to the 1950s. PubMed includes
links to full text articles and other related resources.
Statistics
Disability Statistics Center - http://dsc.ucsf.edu/main.php
The Disability Statistics Center produces and disseminates policy-relevant
statistical information on the demographics and status of people
with disabilities in American society. The Center's work focuses
on how that status is changing over time with regard to employment,
access to technology, health care, community-based services, and
other aspects of independent living and participation in society.
National Center for Health Statistics - http://www.cdc.gov/nchs/
The National Center for Health Statistics' website, a rich source
of information about America’s health. As the Nation’s
principal health statistics agency, we compile statistical information
to guide actions and policies to improve the health of our people.
We are a unique public resource for health information—-a critical
element of public health and health policy.
Treatments and Therapy
Acupuncture and Allied Methods in the Treatment of People with Cerebral
Palsy - http://users.med.auth.gr/~karanik/english/articles/cerpalsy.html
A MEDLINE search for data on acupuncture and allied methods in treatment
of people with Cerebral Palsy.
Alternative and Innovative Therapies - http://www.healing-arts.org/children/
This website has been conceived as a clearinghouse for use by those
concerned with finding and evaluating methodologies and treatment
for brain-injured children. It is based on the belief that the brain
along with the body as a whole is an ever-changing, dynamic, active
organ striving for adaptation and capable of healing.
American Academy of Pediatrics: The Treatment of Neurologically
Impaired Children Using Patterning - http://aappolicy.aappublications.org/cgi/content/full/pediatrics%3b104/5/1149
This statement reviews patterning as a treatment for children with
neurologic impairments. This treatment is based on an outmodedand
oversimplified theory of brain development. Current information does
not support the claims of proponents that this treatmentis efficacious,
and its use continues to be unwarranted.
Beginning Steps to Independence, Inc. - http://www.conductiveed.org/
Beginning Steps to Independence, Inc. is a not-for-profit California
based educational organization. We are dedicated to serving children
with motor disorders such as Cerebral Palsy and those with no diagnosis
but significant developmental delays. BSTII also provides support
services to the families of the children we serve. We seek to be
an active member of the community serving children with special needs,
always promoting awareness of Conductive Education.
Cerebral Palsy: Alternative Therapy Resources
and Support - http://www.angelfire.com/fl2/ziggyiggy/
Alternative therapy information for CP
Chico Hyperbaric Center - http://hbotoday.com/index.shtml
Chico, CA hyperbaric treatment center. The Chico Hyperbaric
Center began as an idea to use hyperbaric oxygen (HBO) therapy to
dramatically improve the quality of life of those around us who are
suffering from disease.
Conductive Education - http://www.conductive-education.org.uk/2007
Conductive Education (CE) teaches children and adults with physical
disabilities such as Cerebral Palsy, dyspraxia, multiple sclerosis,
Parkinson’s, stroke and head injury how to overcome their movement
difficulties.
Cranial Manipulative Therapy - http://www.ncahf.org/articles/c-d/cranial.html
Cranial osteopathy -- also known as craniosacral therapy -- was
developed by William G. Sutherland, DO, who published the first article
on this subject in the early 1930s. Cranio refers to the head, sacral to
the base of the spine. The "craniosacral system" encloses
the spinal cord, cerebrospinal fluid, meninges, and bones of the
skull and spine.
Cranial Sacral Therapy - http://www.thebodytherapycenter.com/cranial.htm
CRANIAL SACRAL THERAPY (CST) is a potent tool using the functions
of the Cranial Sacral system. It is an effective form of bodywork
and of Neuromuscular Therapy which uses gentle movements to unlock
tension and relieve pain. There are no rapid adjustments, painful
contortions, or deep muscle probing.
Euromed Rehabilitation Center - http://www.euromed.pl/
The purpose of Euromed is to help patients suffering from CP and
related disorders to achieve their most important goal — to
gain the ability to walk independently and, at the same time, become
more independent from tier parents and guardians.
Family Village - http://www.familyvillage.wisc.edu/
We are a global community that integrates information, resources,
and communication opportunities on the Internet for persons with
cognitive and other disabilities, for their families, and for those
that provide them services and support.
Feldenkrais Method - http://www.feldenkrais.com/
The Feldenkrais Method is for anyone who wants to reconnect with
their natural abilities to move, think and feel. Whether you want
to be more comfortable sitting at your computer, playing with your
children and grandchildren, or performing a favorite pastime, these
gentle lessons can improve your overall well being.
Foundation for Conductive Education - http://www.conductive-education.org.uk/2007/
Conductive Education (CE) teaches children and adults with physical
disabilities such as Cerebral Palsy, dyspraxia, multiple sclerosis,
Parkinson’s, stroke and head injury how to overcome their movement
difficulties
HBOT for Develpmental Disabilities including RS and CP - http://hbot.freeservers.com/
HBOT involves the inhalation of 100% oxygen inside a chamber pressurized
above sea-level atmospheric pressure. Medical studies have found
low-pressure HBOT to be a safe and beneficial treatment for many
medical conditions, although some of these conditions are not yet
recognized as standard medical practice.
Island Dolphin Care - http://www.islanddolphincare.org/
Island Dolphin Care is a not for profit organization that provides
dolphin assisted therapy to children with critical illnesses, disabilities
and special needs from all over the world.
Johns Hopkins Medical — Rehab - http://www.hopkinsmedicine.org/rehab/
The Department of Physical Medicine and Rehabilitation at Johns
Hopkins is pleased to present this online guide to our patient care,
research and medical education programs.
Neurodevelopmental Pediatrics - http://ourworld.compuserve.com/homepages/deschlw/
Developed to serve as a resource for Neurodevelopmental Pediatricians.
RideAble - http://www.rideable.org/index.html
Horses have the power to change and heal. For a person with disabilities,
riding on a horse can be a life-changing event. Not only can it mean
reaching wilderness areas not otherwise accessible, but it means
reaching within for something undiscovered.
The Canadian M.E.D.E.K Center - http://www.medek.ca/
The Canadian MEDEK Center and Physiotherapy Clinicis a specialized
clinic providing physical therapy services for children with movement
disorders. We believe that independent mobility is the key to a life
of quality, and that mobility act as the vehicle for a child's cognitive,
emotional and social development.
The Ocean Hyperbaric Neurologic Center - http://www.oceanhbo.com/
The Ocean Hyperbaric Neurologic Center (OHNC) was the first and
original facility to specialize in the neurologic applications of
hyperbaric oxygenation and the potentially recoverable brain, treating
stroke, coma, traumatic brain injury, Cerebral Palsy, anoxic encephalopathy
and multiple sclerosis patients.
The Welsh Initiative for Conductive Education - http://dspace.dial.pipex.com/town/parade/kaf86/index.html
"Coldon" the Welsh School for Conductive Education is
a registered school and provides an education for children who have
Cerebral Palsy. The school uses Teachers/Conductors and this educational
method now delivers both the individual physical and academic needs
of the pupils.
