Legal and Medical Resources to Empower Cerebral Palsy Families
1-800-CPFamily (273-2645)
To find help, answer the questions below. They will be reviewed by the doctors and attorneys who helped us.
FREE state-specific resource list covering everyday activities to emergency situations.
Organize important information and resources for yourself and other caregivers.
In October, I wrote several articles titled “Diary of a Crisis” about a medical emergency we experienced with our daughter, Danielle. Danielle has suffered from severe spastic quadriplegia cerebral palsy since birth. The past 18 months have been a constant struggle with medical professionals to get answers about our daughter's deteriorating health.
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Birthing classes and many books about pregnancy help parents-to-be prepare for the birth experience and some of their choices, especially when it comes to managing pain. However, few deal with potential complications, preferring to leave that scary ”what if” in the hands of doctors. However, my experience as a practicing obstetrician for more than 20 years is that it’s vitally important for parents to know what standards of care are and how to advocate for themselves and their child if these standards are not being met.
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[...] As a parent of a child with cerebral palsy, or a disability caused by brain injury, it’s important to look into the benefits of physical therapy. Physical therapy isn’t needed for every child, but any child experiencing limited range of motion or irregular movements should be evaluated for physical therapy. What can you expect from a physical therapist? What questions should you ask? Get the facts at Physical Therapy Basics, Rights and Cautions. [...]