Legal and Medical Resources to Empower Cerebral Palsy Families
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By Kelly McLaughlin You can’t pick up a health or food magazine these days without seeing a headline trumpeting the wonders of vitamin D and research claiming many of us are deficient in it. It’s only recently that children are being screened for vitamin D deficiencies, especially in the non-ambulatory population. The results are worth [...]
By Teresa Kelly What may look like science fiction is really a true story for two young patients with cerebral palsy. Austin Hammer, 18, of Wyoming, was born with spastic diplegic cerebral palsy. He has been undergoing therapy using a specialized compression therapy suit that originated with the Soviet space program, as reported in The Grand Rapids [...]
By Lee Vanderloop I saw a cartoon in the newspaper the other day that featured a conversation between a sleep-deprived mom and dad arguing over who should get up for the 3 a.m. feeding. It was a reminder that sleeplessness is an inevitable part of parenting a newborn that most, at least when they’re past [...]
Electronic Fetal Monitoring (EFM) significantly reduces neonatal and infant deaths, according to an article in the June 2011 issue of the American Journal of Obstetrics and Gynecology. Parents need to know about this important technology before they reach the labor and delivery room. In order to advocate for their unborn or newborn child, they need to know what [...]
Should babies sleep on their stomachs or backs? Pediatricians recommend back sleeping for a variety of reasons, one of them being a link between stomach sleeping and Sudden Infant Death Syndrome. But recent studies have pointed to other infant health issues associated with infants spending a lot of time on their backs. This not only [...]
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In October, I wrote several articles titled “Diary of a Crisis” about a medical emergency we experienced with our daughter, Danielle. Danielle has suffered from severe spastic quadriplegia cerebral palsy since birth. The past 18 months have been a constant struggle with medical professionals to get answers about our daughter's deteriorating health.
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Birthing classes and many books about pregnancy help parents-to-be prepare for the birth experience and some of their choices, especially when it comes to managing pain. However, few deal with potential complications, preferring to leave that scary ”what if” in the hands of doctors. However, my experience as a practicing obstetrician for more than 20 years is that it’s vitally important for parents to know what standards of care are and how to advocate for themselves and their child if these standards are not being met.
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