Legal and Medical Resources to Empower Cerebral Palsy Families
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By Lee Vanderloop Spastic cerebral palsy is the most common form of cerebral palsy, occurring in 50-75% of all cases. People with spastic cerebral palsy have too much muscle tone or tightness, a condition called hypertonia. Their movements are stiff and jerky, especially in the legs, arms, and back. Sometimes an infant born with weak [...]
It is important for parents, when bringing their child home from the hospital to take notice of their movements or lack of movement. In young children (0 – 3 years), weak muscle movement, spasms, or twitches can be overlooked by doctors who are unfamiliar with special needs children. Movement disorders in young children can be [...]
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FREE state-specific resource list covering everyday activities to emergency situations.
Organize important information and resources for yourself and other caregivers.
In October, I wrote several articles titled “Diary of a Crisis” about a medical emergency we experienced with our daughter, Danielle. Danielle has suffered from severe spastic quadriplegia cerebral palsy since birth. The past 18 months have been a constant struggle with medical professionals to get answers about our daughter's deteriorating health.
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Birthing classes and many books about pregnancy help parents-to-be prepare for the birth experience and some of their choices, especially when it comes to managing pain. However, few deal with potential complications, preferring to leave that scary ”what if” in the hands of doctors. However, my experience as a practicing obstetrician for more than 20 years is that it’s vitally important for parents to know what standards of care are and how to advocate for themselves and their child if these standards are not being met.
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