Legal and Medical Resources to Empower Cerebral Palsy Families
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By Teresa Kelly What may look like science fiction is really a true story for two young patients with cerebral palsy. Austin Hammer, 18, of Wyoming, was born with spastic diplegic cerebral palsy. He has been undergoing therapy using a specialized compression therapy suit that originated with the Soviet space program, as reported in The Grand Rapids [...]
Children with cerebral palsy may need medical assistance at home that a parent or family member can’t provide. If this is the case, home health care nurses can provide valuable assistance. What can and should you expect from a home health care worker? What should they expect from you? With some knowledge and preparation, you [...]
As a parent of a child with cerebral palsy, or a disability caused by brain injury, it’s important to look into the benefits of physical therapy. Physical therapy isn’t needed for every child, but any child experiencing limited range of motion or irregular movements should be evaluated for physical therapy. What can you expect from [...]
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In October, I wrote several articles titled “Diary of a Crisis” about a medical emergency we experienced with our daughter, Danielle. Danielle has suffered from severe spastic quadriplegia cerebral palsy since birth. The past 18 months have been a constant struggle with medical professionals to get answers about our daughter's deteriorating health.
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Birthing classes and many books about pregnancy help parents-to-be prepare for the birth experience and some of their choices, especially when it comes to managing pain. However, few deal with potential complications, preferring to leave that scary ”what if” in the hands of doctors. However, my experience as a practicing obstetrician for more than 20 years is that it’s vitally important for parents to know what standards of care are and how to advocate for themselves and their child if these standards are not being met.
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