Legal and Medical Resources to Empower Cerebral Palsy Families
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By Lee Vander Loop Parents of children with cerebral palsy soon learn to speak many languages. The first are “medical” and “insurance.” A close third would be “legal,” especially as it relates to Life Care Planning. Just as we took pains to learn the medical terminology that our new life as parents of children [...]
By Howard Janet Washington University Medical School researchers report that an enzyme in the body that protects against brain cell death may help prevent cerebral palsy that results from oxygen deprivation during labor and delivery. As exciting as this is, I can’t help wonder – again—at all the effort by medicine to address cerebral [...]
By Teresa Kelly (Editor’s note: this is the third in a series of articles focused on developmental delays as they may show up in a child with cerebral palsy) Most, but not all, children with cerebral palsy (CP) are diagnosed by 18 months of age. Children can grow on very different timetables based on a [...]
By law, children with special needs are entitled to free government assistance, and may qualify for tax credits or deductions. Each state has specific guidelines for special needs assistance. Who is eligible under the designation of “special needs” and how do you find this educational aid? To learn more, please visit Cerebral Palsy News: What Does “Special Needs” Really [...]
It is important to educate ourselves on what “special needs” really means and understand which conditions or issues call for special services. “Special needs” covers a wide range of diagnoses dealing with medical, behavioral, developmental, learning, or mental health issues. To learn more, please visit Cerebral Palsy News: What Does “Special Needs Really Mean - Who [...]
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In October, I wrote several articles titled “Diary of a Crisis” about a medical emergency we experienced with our daughter, Danielle. Danielle has suffered from severe spastic quadriplegia cerebral palsy since birth. The past 18 months have been a constant struggle with medical professionals to get answers about our daughter's deteriorating health.
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Birthing classes and many books about pregnancy help parents-to-be prepare for the birth experience and some of their choices, especially when it comes to managing pain. However, few deal with potential complications, preferring to leave that scary ”what if” in the hands of doctors. However, my experience as a practicing obstetrician for more than 20 years is that it’s vitally important for parents to know what standards of care are and how to advocate for themselves and their child if these standards are not being met.
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