Legal and Medical Resources to Empower Cerebral Palsy Families
1-800-CPFamily (273-2645)
By Lee Vanderloop When my first daughter was born, she exhibited a total absence of any type of oral motor skill and necessitated a feeding tube from birth. Her birth injuries occurred as a result of “cord complications of unknown origin.” When our second child was born with cord complications, my husband had orders from [...]
IN THE TRENCHES – What a Parent Needs to Know About Gastro-Esophageal Reflux Disease Like a lot of new parents of a child with cerebral palsy, I tended to think of CP’s affect only on muscles involved in movement and mobility. I didn’t consider CP’s possible impact on muscles that help gastric emptying, swallowing, bowel [...]
With infants, an inability to suck may be the first indication that they have cerebral palsy. Left unaddressed, it can lead to malnutrition and other problems. Lack of oral motor abilities can also affect the ability to swallow, and later on, speech. Fortunately, there are a number of treatments available to help your child strengthen [...]
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In October, I wrote several articles titled “Diary of a Crisis” about a medical emergency we experienced with our daughter, Danielle. Danielle has suffered from severe spastic quadriplegia cerebral palsy since birth. The past 18 months have been a constant struggle with medical professionals to get answers about our daughter's deteriorating health.
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Birthing classes and many books about pregnancy help parents-to-be prepare for the birth experience and some of their choices, especially when it comes to managing pain. However, few deal with potential complications, preferring to leave that scary ”what if” in the hands of doctors. However, my experience as a practicing obstetrician for more than 20 years is that it’s vitally important for parents to know what standards of care are and how to advocate for themselves and their child if these standards are not being met.
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