Legal and Medical Resources to Empower Cerebral Palsy Families
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By Dana DeRuvo, R.N When my son Nicholas, who has cerebral palsy, was 4, my other children, Rachel and Jackson, starting begging me for a puppy. Just what I needed. As any parent of a child with special needs knows, so much time is spent going to doctor appointments, therapists, and school meetings – not to mention [...]
by Chuck Kelly/ THE BELTON JOURNAL Six years ago, a precious baby girl was born — she was under intensive care for 11 days and nearly died — but after a long valiant struggle, six years later Lexi Murphy’s life is taking a major change. Little Lexi, daughter of Kelly and Kathy Murphy, is a [...]
By Dana DeRuvo, R.N. When the time came to find daycare for my oldest child, Rachel, I researched, interviewed and lamented over the perfect choice. When the time came to do the same for my special needs toddler, Nicholas, the process was much more difficult. Just thinking about it was overwhelming, making it hard for me to move [...]
By John Hartford An iPad is practically a must for any special needs child today. These mobile devices are proving especially adept at teaching and motivating children with movement, speech, hearing or cognitive delays to communicate. With the touch of a finger, worlds open up, frustrations vanish, and goals are achieved. What’s not to [...]
By Lee Vander Loop Speech and language disorders, such as difficulty forming words and speaking clearly, are present in more than a third of those with cerebral palsy. Some may have a limited ability to learn and understand speech due to cognitive impairment. Others may have difficulty speaking clearly because of poor control over [...]
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In October, I wrote several articles titled “Diary of a Crisis” about a medical emergency we experienced with our daughter, Danielle. Danielle has suffered from severe spastic quadriplegia cerebral palsy since birth. The past 18 months have been a constant struggle with medical professionals to get answers about our daughter's deteriorating health.
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Birthing classes and many books about pregnancy help parents-to-be prepare for the birth experience and some of their choices, especially when it comes to managing pain. However, few deal with potential complications, preferring to leave that scary ”what if” in the hands of doctors. However, my experience as a practicing obstetrician for more than 20 years is that it’s vitally important for parents to know what standards of care are and how to advocate for themselves and their child if these standards are not being met.
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