Legal and Medical Resources to Empower Cerebral Palsy Families
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By Dr. Jim Blackman, Medical Director, Cerebral Palsy International Research Foundation Stem cell therapy is promising yet there is misunderstanding regarding the current state of its readiness for treatment of cerebral palsy. There are only two institutions in the United States conducting carefully designed research trials of stem cells in cerebral palsy but there are [...]
By Dana DeRuvo, R.N When my son Nicholas, who has cerebral palsy, was 4, my other children, Rachel and Jackson, starting begging me for a puppy. Just what I needed. As any parent of a child with special needs knows, so much time is spent going to doctor appointments, therapists, and school meetings – not to mention [...]
by Chuck Kelly/ THE BELTON JOURNAL Six years ago, a precious baby girl was born — she was under intensive care for 11 days and nearly died — but after a long valiant struggle, six years later Lexi Murphy’s life is taking a major change. Little Lexi, daughter of Kelly and Kathy Murphy, is a [...]
By Terrence O’Brien/ENGADGET Christopher Hill isn’t your typical video producer. The youngster whipped up the clip after the break controlling his array of Macs almost entirely with a single switch. Chris has cerebral palsy, a severe motor function impairment that makes it all but impossible for him to interact with a computer through a traditional [...]
By Kelly Jo Stidham Kelly Jo, Blake and Kevin StidhamIn 2010, when my son Blake was four, it started getting harder to put on his braces (DAFOs). As I would try, his right leg was so tight that it would scissor over the top of his left leg. It was so painful to bend his [...]
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In October, I wrote several articles titled “Diary of a Crisis” about a medical emergency we experienced with our daughter, Danielle. Danielle has suffered from severe spastic quadriplegia cerebral palsy since birth. The past 18 months have been a constant struggle with medical professionals to get answers about our daughter's deteriorating health.
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Birthing classes and many books about pregnancy help parents-to-be prepare for the birth experience and some of their choices, especially when it comes to managing pain. However, few deal with potential complications, preferring to leave that scary ”what if” in the hands of doctors. However, my experience as a practicing obstetrician for more than 20 years is that it’s vitally important for parents to know what standards of care are and how to advocate for themselves and their child if these standards are not being met.
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