Legal and Medical Resources to Empower Cerebral Palsy Families
1-800-CPFamily (273-2645)
By Howard Janet Fortunately, most births in the United States are complication-free. But in my practice, I primarily deal with parents whose child was diagnosed months or even years after birth with cerebral palsy, and who suspect medical error may have played a part. I have investigated some 10,000 of these cases over the years. As a result, [...]
By Teresa Kelly (Editor’s note: this is the third in a series of articles focused on developmental delays as they may show up in a child with cerebral palsy) Most, but not all, children with cerebral palsy (CP) are diagnosed by 18 months of age. Children can grow on very different timetables based on a [...]
By Kelly McLaughlin Music has long been known to affect the brain in healing ways. Mothers croon to settle fussy babies, cancer patients relax under the soothing strains of Brahms, and rhythmic drumming can calm a crowd and bring it into harmony. Traditional physical therapies have used music to smooth a walking gait, promote relaxation, [...]
By Lee Vanderloop As a parent of a child with cerebral palsy, you’re always researching therapies and interventions that may be helpful to your child. You listen to the professionals, run from doctor appointments to therapy appointments, and research all the latest interventions. You talk to other parents about what therapies and interventions they’ve tried and their [...]
It’s difficult to find a professional who can keep you both reassured and calm when coping with a child who has cerebral palsy. From doctor appointments to scheduled therapy sessions, one’s patience and hope for a solid answers can fade quickly. However, with the rapid growth of technology today, new advancements are being made for [...]
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In October, I wrote several articles titled “Diary of a Crisis” about a medical emergency we experienced with our daughter, Danielle. Danielle has suffered from severe spastic quadriplegia cerebral palsy since birth. The past 18 months have been a constant struggle with medical professionals to get answers about our daughter's deteriorating health.
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Birthing classes and many books about pregnancy help parents-to-be prepare for the birth experience and some of their choices, especially when it comes to managing pain. However, few deal with potential complications, preferring to leave that scary ”what if” in the hands of doctors. However, my experience as a practicing obstetrician for more than 20 years is that it’s vitally important for parents to know what standards of care are and how to advocate for themselves and their child if these standards are not being met.
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