Legal and Medical Resources to Empower Cerebral Palsy Families
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No group of people have more at stake in Washington budget talks than families with children with cerebral palsy. Any cuts to Medicaid will affect more than 10 million children with special needs, most of whom use Medicaid either as their sole provider or as a supplement to private insurance. A just-released report by the [...]
Parents of children with cerebral palsy often look for alternative treatments to provide a better way of life for their child. Lisa Viele is one such parent. Her 11-year-old daughter, Lizzy, is blind, non-verbal, suffers from seizures, is spoon-fed, and wears diapers. After hearing a story of success from a fellow cerebral palsy parent, Lisa [...]
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In October, I wrote several articles titled “Diary of a Crisis” about a medical emergency we experienced with our daughter, Danielle. Danielle has suffered from severe spastic quadriplegia cerebral palsy since birth. The past 18 months have been a constant struggle with medical professionals to get answers about our daughter's deteriorating health.
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Birthing classes and many books about pregnancy help parents-to-be prepare for the birth experience and some of their choices, especially when it comes to managing pain. However, few deal with potential complications, preferring to leave that scary ”what if” in the hands of doctors. However, my experience as a practicing obstetrician for more than 20 years is that it’s vitally important for parents to know what standards of care are and how to advocate for themselves and their child if these standards are not being met.
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